Thursday, June 9, 2011


(Actually, day swimming.  But if I write Nightswimming then the REM song starts in my head and I love having that song playing in my head, so I'm keeping it.)

We've had two days of oppressive heat & humidity here . . . what better day to re-join the pool?  As a suburb girl, I'm a fan of the outdoor summer pool---but here in our neighborhood the indoor one turned out to be cheaper (and it has longer hours, and includes a gym membership----how is that even possible?) . . . regardless,  we'll be hanging out (indoor) poolside this summer.

Before we could leave for the pool I told Maya "We have to take Parker out to go potty" and I went to find my sunglasses . . . when I turned around, she was holding the leash!

Is this what you're looking for, Mom?

Parker!  Stay still!  Don't eat the leash!  We have to get this on so quick . . . mama said she's takin' me to the pool!

Who cares if the leash isn't on?!  Let's go!

Fun times were had by all at the pool.  I took some pictures on my phone to text to Dave (in a sharing-the-cuteness way, not a you're-at-work-and-we're-at-the-pool way):

This was "Maya, make a silly face!"

This was "Maya, smile!"  Maybe we need to work on making a smiling face.

The most amazing part of the pool visit was this sign:


We were hanging out by the stairs and Maya was furiously pointing at it and making noises (the girl loves letters).  Just for kicks, I took her over and said Where's the E? and she pointed at one of the E's. 

Where's the D? Got it. 

Where's the P? Right again.

Where' the 3? Pointed at it, and then held up 3 fingers (like we taught her for her birthday).

Holy crap.

She's such a little sponge, just constantly soaking things up.  I haven't been doing any sort of focused letter stuff with her, other than watching Leapfrog Letter Factory once or twice a week and singing the song from it.  I haven't been showing her the letters (and certainly not the numbers).  But I will be now :)

 Daddy, when I'm done swimming I get to wear a pretty dress and pink sandals!!!

I tried to get a picture of her in the dress when we got home, but all I got were a bunch of shots that look like this:

She's too quick :)  (How great is that to say?!)  It's not quite running, but it's some sort of if-you-walk-any-faster-you'll-certainly-land-on-your-face pace, and I love it.  I love the fact that sometimes I have to do a few little joggy steps to get to her :)

And a quick post-hospital update . . .
True to form, Maya's still a little off from the anesthesia/hospital experience.  I feel like biologically it shouldn't last this long, but it seems to always take her a solid 2-3 days before she's totally back---she's taking longer naps, going to bed earlier, and trying to quit her therapy sessions midway through by employing the I-just-need-a-hug tactic on her therapists (with varying degrees of success).

As for me, I've spent the past two days exchanging dozens of emails with a good friend who happens to be a pediatric research audiologist in LA.  I made sure to get a tiny bit of data on Tuesday that I could feed to her, and based on that she created a graph to teach me the basics of hearing threshold data.  When I wondered about the reality of hearing aids, she sent me pictures of the pediatric aids from her center.  When I asked about the process of making Maya's hearing aids, she sent me a detailed play-by-play of how they create the new hearing aids where she works, what to expect at the appointments, and the brand and model number that her coworkers recommend based on Maya's case history.  When I started to struggle and question the validity of the findings (more on this some other time, but considering that we've already had one ABR that I don't trust, how can I be 100% certain of this one?) she consulted with some more people on her end and passed along the consensus of their thoughts.  Since Tuesday we've traded 22 emails, several of which included pdfs that she made to teach me about things. 

And she's another one of my internet friends. 

Another one that I've never met.  

We did have one telephone conversation a few weeks ago---helping me figure out if the sedated ABR was a good next step or more-than-what-was-necessary.  But other than that, she's a message board/Facebook/email friend.  Seriously, I'm so happy to live in this age of internet networking---where I can meet intelligent, wonderful women who have a great impact on my life.  

Thanks, Amy :)


Beth said...

Hi Dana, I have actually been reading you blog for awhile, but I've never commented. I came because of the Holland post and just didn't stop reading. I have to compliment you on your positive and humorous outlook on life. :)

Anyway, I'm commenting because my son (who has a chromosomal deletion) got hearing aids several months ago and I thought I'd share our experiences. His hearing loss is exactly as you describe Maya's to be - mild in both ears. He can hear low and high sounds but misses things in the middle. We were slightly surprised about it all too because it seems like he hears a lot of what we say.

We got the oticon safari aids with a handy cover that has clip so we can attach them to his shirt. They are very small and are barely seen from the front. Honestly, we haven't really noticed too much of a difference in terms of attention to sounds, but he is vocalizing a wider range of sounds.

Anyway, this is a long comment so I'll stop here. Good luck with everything!

Erica said...

You're awesome and I wish we lived somewhat close so we could have one of those "are you sure its not that weird to meet someone you met online" meet ups. I. LOVE. YOUR. BLOG. the end.

Run Amy Run said...

It's always a joy to connect with you.

Dana said...

Beth---thanks for sharing! I'm hoping that Maya will be more chatty after we get the hearing aids as well. We're also thinking about the safari aids :)

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