". . . and other favorite bedtime rhymes"

This morning Maya & I were sitting on the floor, reading some books.  She loves reading books, which I guess I can't complain about, but Weds. when she woke up from her nap I said "Guess what?!  We have time to go outside and play before therapy!" and she started to cry, pointing at her bookshelf and signing "Want! Book! Book! Book! Want!".  (We compromised and rushed through 2 books before going to the playground.)

I digress. 

We were reading a book called "Twinkle, Twinkle, Little Star, and other favorite bedtime rhymes" when we came across the gem below.  First, look at how cute the page is, with the sweet little cartoon goose.  He's smiling, climbing some stairs, wearing a bow . . . awwww.

Here are the words, in case you can't see them (in bold).  Also, here is the side commentary that I said to Maya as we read (in italics). 

Goosey, goosey, gander       See the goose, Maya?  A goose says "honk, honk"

Whither shall I wander?       That doesn't rhyme.

Upstairs and downstairs,

And in my lady's chamber.   Maybe that's the chamber door, right?  Can you do "knock, knock" on

                                                the door?

There I met an old man,

Who wouldn't say his prayers.

I took him by the left leg,             (tapping) This is your left leg, Maya!        

And threw him down the stairs.     . . . . . . . . . . . . . . . . . . . . . . . . . . .dude.

Seriously, folks.  There are about 17,000 "other favorite bedtime rhymes" out there.  Dave alone makes up 2-4 rhymes on an average day.  And somehow "Goosey, goosey, gander" was a must have in this compilation?  

Although it did spice up story time for me, if I had been reading to anyone older it might send the wrong message . . . you know, like if someone doesn't do what you want, just grab them by the left leg and toss them down the stairs.  Maybe the hidden lesson here is about right vs. left?

Goodnight all :)

Maya & Elmo, sittin' in a tree

It's official---she's in love.  She has a few Elmo books, a few Elmo toys, and we put on the "Elmo's World" segment of Sesame Street a few times a week.  She loves it.

If you've never seen it, Elmo sings and talks and has little guests and gets email (no joke)---so he often disappears for a little bit (while a mini-segment happens) and then reappears.  And every single time he shows back up, she goes bananas. 

Every. single. time. 

B-a-n-a-n-a-s.

Like this:


OHMYGOODNESS!!!                                               Mommy, it's ELMO!!!

He's right there!                                                                                     I'm so excited :)

:)

Kitchen accomplished

I put up an album on the Facebook page :)

The kitchen is done!  (Aside from cleaning the inside of cabinets, fridge, etc).  I did the outside stuff first to see some results, which should motivate me to keep going.

Talking and apples

Maya is trying to communicate more and more, sometimes with very frustrating results.  She is signing things that I don't understand, and does a lot of pointing (which I also sometimes don't understand).  She's developing a habit of grabbing my face and squeezing it (ouch) when she wants to tell me something.   I'm going to work today and tomorrow at trying to get picture magnets printed so that we can try using a picture system (when I printed them and laminated them, she just wanted to play with the little cards---hopefully magnets will work better.  Who knows.)

Anyway, yesterday I was feeding her a cereal bar and vacuuming.  She was on the floor, and I would give her a piece, vacuum for a minute, stop the vacuum, ask her if she wanted more, she would say "Mo, mo" and I would give her another piece.  I guess at one point I vacuumed for too long (and obviously I can't hear her little voice over the vacuum) because suddenly I felt something on my leg and when I looked down she was there.  She was holding her hands up to me and rapidly signing "More! More! More!"  She certainly knows what she wants :)  In she could talk I think she would have been saying "Hey!  Come on!  I'm starving here!"

Speaking of food, our apples are almost gone!  Most went to applesauce, a few went to apple bread. 

Here are the recipes (both of which were really easy):

Chunky Cinnamon Applesauce

Ingredients: Apples, cinnamon

Directions: Peel, core & roughly chop apples.  Put them in a crockpot with cinnamon.  Cook them until they're done enough for you.  (Low overnight or for most of a day, probably . . . high for 3-5 hours I think).  Ta-da!

Freezing: Since we all like the applesauce, I didn't freeze it in cubes (my usual MO for sauces/soups/liquidy things).  I just cooled it in the fridge, put it in a ziploc quart size freezer bag, and froze flat.


Apple Bread--makes 2 loaves!!!! (courtesy of my sister, with a little tweaking from me)

Ingredients:
1/2 cup applesauce
1/2 cup vegetable oil
3 eggs
2 cups sugar
1 tsp vanilla extract
3 cups diced apples (2-4 apples, depending on size)
3 cups flour (I used bread flour, it was the only thing I had on hand, and it worked fine)
1 tsp baking soda
1 tsp cinnamon
1 tsp salt

Directions: In one bowl, combine the first 6 ingredients (up to and including the apples).  In a second bowl, combine the last 4 ingredients.  Next, combine the two bowls together.  Grease two loaf pans well and bake a 300 for 90 mins. (Warning: The pans will only be half full or so when you fill them--don't worry, it will puff up)

This recipe is good, but it you want to make it fantastic, add a crumbly top (kind of like a coffee cake top):
Combine 1/4 cup brown sugar with 3 tbl flour, then use your fingers to mash in 2 tbl of butter until it forms coarse crumbs.  Sprinkle across the top of the loaf before baking----yum!!!  (I did this for each loaf and it was really good.) (Thanks, HCM, for the crumbly top help!)

Freezing: We ate one loaf and froze the other.  Cut it into slices, freeze flat, then put the slices in a gallon size ziploc freezer bag.

Oh brother, times 10

In choosing to blog about life with a child with special needs, I think it would be irresponsible not to include some of the bad days . . . otherwise, readers who are in similar situations may feel like I'm idealizing life, or minimizing and skipping over the obnoxious, challenging parts.  Today was one of the lousier days.  If you're thinking "Lousy days be damned---make me smile!", then just skip ahead to the end :)

Today a lot of annoying things added up and became totally overwhelming.  Here were a few:

1. We have a huge stack of bills and insurance stuff to deal with. I have to call them, but I've been putting it off because although I hear of people "fighting with their insurance" to get things paid for, I have no idea what that actually means. I feel like I'm going to call and talk to some pencil pusher who says "we don't pay for that" and I'm going to say "you need to, the geneticist said she needed this test" and then he'll say "well, we don't" and then what do I do?  (I'm going to start making calls tomorrow, though.  I know I'll feel better once I address it.)

2. Parker's therapy dog class last night sucked, and I have a ton of work to do with him.

3. I can't get anywhere with the agencies that are supposed to sign off so that Maya can get splints for her legs. The process has been going on for literally months. I spent time basically bitching at several different people over the past 2 weeks, but all of them are powerless . . . the people who actually have the power to move it along either: are never in the office, don't answer their phones, or have permanently full voicemail boxes. I am waiting on a new phone number that I can start calling to bother people, and soon I'm going to request an address and just camp out there.  With Maya.  And Parker.  And we're going to sing "Wheels on the bus".  Over and over.  And then I'll change the lyrics to "The people in the office need to sign that form, sign that form, sign that form . . . the people in the office need to sign that form or we'll never, ever leave."

4. I worry that our lack of ability to get spints, and to get our speech agency changed, might indicate that this agency will mess up our transition to the preschool system, which starts in the winter/spring.

5. As I try to do all of this, I still am surrounded by way too much stuff at home. Why is there a pile of change, a tube of sunblock, and business cards on the counter?  Why can't we stay on top of putting things away, instead of emptying our pockets or stroller contents or whatever when we walk in the door?  (This is why the purging & reorganization project will continue, even if it's only at a snail's pace, until everything has a home that is easily accessible.)

I've just had it today.

And I tried sitting on the floor and crying, but it didn't help.  And Maya didn't understand what I was doing, and sat next to me with a furrowed brow.  Then I sniffled "Mommy's sad, Maya.  Can you give me a hug?"  And she climbed right into my lap and did just that.  Then she squeezed a handful of my face and I had to kick her off.
 
So, there's that.  It's not all sunshine and roses here . . . but we do have some good times :)  New pictures are up in the Facebook album "What clean(ing) looks like", so you can see progress in the media center bookshelves.  And here's a video of our dynamic duo . . . playing together in the hallway. 
 
Highlight: You may not have ever heard Maya talk before, because she gets pretty quiet when other folks are around.  But here, you can hear her version of "Pa-pa"----her nickname for Parker.  It's the only thing she'll reliably say almost every time we ask her to.  The silly part is that she says "Ma ma!" instead of "Pa-pa".   You'll hear it at 1:03.
 



Remember, if you just see a blank spot with a "play" arrow underneath, click the arrow and the video will start!

Oh brother

Try real hard to remember back to 8th grade.   At my (tiny) elementary/middle school, I graduated 8th grade in a class of 17 (I can still name every one of them---and a bunch are Facebook friends, who might even be reading this---so shoutout to my class of '93 8th grade grads!).  We were the top dogs, and felt like the coolest kids around.  Maybe you were the *best* something in 8th grade---the best singer in your class, the fastest runner, the funniest.

And then you went to high school.

And suddenyl you're a very little fish in a very big pond.

That was therapy dog class tonight.  Sigh.

If you've hung out with Parker, you know that he's a great dog.  We've worked really hard with him, and he does so many amazing things:

-He will lay down and stay at the playground, as little kids run past within an inch of his nose.
-He will whimper and look at me with big eyes---but not move or snap or growl or scratch---when Maya grabs a handful of fur.
-He will gallop floppily to Maya and eagerly lick her face when I say "Parker!  Where's Maya?!?"
-He puts himself to bed
-He will wait forever if I put food in front of him and say "Leave it"
-etc

But---he wants, more than life itself, to play with other dogs.  Just desperately wants to frolick with them in puppy madness.  At 7 months, he was the youngest pup there by far---and his puppy "Dogs! Dogs! Hey, you dogs!  I need to play with you I'm right here will someone look at me I can't stand it I'm all alone!"ness it the biggest challenge we're going to face.

He did great with the one-on-one stuff---the trainer and her volunteer could pull on his paws, stick fingers in his mouth, etc etc---no problem.  He took treats gently.  He sat and stayed.  But he whimpered, wiggled, and tried to play with the other dogs as they walked by----so embarassing!

I thought we were at the top of our game. 

Sigh.

We have a lot lot lot lot of work to do.  We might not pass this round of classes, I fear.  He might just need to be older to gain more of the self control.  

I need to look at it like a challenge, dust myself off, and tackle it tomorrow.  But puppy training is really hard work with a toddler in tow.  Throw in a toddler who needs constant physical support, and how can I manage it?  How can I do our homework --- "find strangers and get them to approach your dog to pet him while you kneel next to him"----while holding a wiggling Maya, or having her sit in the stroller (yelling) to watch?

I thought we were a lot further along this training road than we actually are.  And it's both daunting and annoying.  Argh.

Beauty is in the details . . .

My cleaning out has sputtered a bit this week . . . the apples that took over the kitchen clamored to be cooking into applesauce and apple bread (recipes to follow), the fridge is nearly overflowing with CSA veggies to be processed and enjoyed.  I only have a few free hours when Maya is napping, and they've gotten eaten up by more routine chores. 

But as we clean out, we are taking the time to make small upgrades, too.  Why wait?  There's no point in putting off fun little adjustments that make such a nice difference. (Speaking of upgrades---did you see my fun new clogs on the Facebook page?  When you get rid of old, broken shoes, you get new fun ones!)

I hung a bulletin board (that I've been intending to hang since we moved here . . . 2.5 yrs ago), but it looked too school-bulletin-boardish, so I gave it a quick sloppy coat of plum/wine colored paint . . . much nicer.  A free, tiny adjustment that makes me smile when I walk by it:

I've been trying to find a home for my glass vases (previously they were in a kitchen cabinet, but I want to free that space for more pantry stuff).   Finally, I decided to home some of them on the bookcases in our living room (we have three, with glass doors----two in a media center, one as part of a hutch).  At the craft store this afternoon I scored some pumpkins, gourds & pincones, which fill the cases are create a nice autumn touch---the hutch is done, now I'll have to figure out how to arrange the others. 


Doors open:                                                                      Doors closed:

I'm excited to swap these out with other seasonal stuff----my mom always has nice seasonal decorations . . . it just makes every time of year feel special  :)  And since these displays will all be behind glass doors, they will stay simple and out of the way.  No clutter!

In other news, Parker's therapy dog classes start tomorrow night (and I'm nervous!).  He's definitely been practicing here at home . . . his patience and obedience are tested daily by little Maya, who now like to give him hugs and kisses:

Maya: I love you, Pa-pa!  Mwahhh!

Parker: Oh brother.                         

Seriously, though, their relationship is so cute.  I need to get some videos and pictures to show off here----he runs to her with his little tail stump wagging and licks her ears and head and she giggle, giggle, giggles.  She yells "Ma ma!" (which is how she says Pa-pa, her best attempt at Parker) and he's learning to come running when he hears it (again, more giggles).  We don't know if we'll ever fully use him in a service dog capacity (who knows what Maya will need in the long run), but he's certainly her therapy dog, 100% of the time.  He's been everything that we were hoping for :)

My new 'do

Ever wonder what it would look like if  . . .

. . . you let a toddler cut your hair?

 . . . or fell asleep with several pieces of gum in your mouth that fell out and got into your hair and had to be cut out?

. . . or you put a blindfold on your hair stylist, tied one hand behind their back, and just said "go for it!"?


Maybe something like this:

As new hair grows in (hooray!) I've been left with crazy tufts that stick straight up.  If you've been checking out our albums on Facebook (apple picking, baby rats, etc) you may have noticed that I'm wearing a lot of hats lately----and now you see why! 

Don't get me wrong, I much prefer crazy cowlicks to shiny bald patches, but they are really distracting.  No amount of gel will hold them down, and it's hard to meet people and have normal conversations without acknowledging that I have weird vertical hair chunks all over the top of my head.  It screams "make a joke about Maya playing with scissors while I was passed out on the couch".  So as not to alienate people with jokes about being a neglectful parent and endangering the welfare of my toddler (weird, isn't it, that some people don't get my humor?), hats seem like the safest option.

(More hair is still falling out, but I'm not focusing on that right now.  Instead of shots, I'm now using a cortisone foam that gets applied to my scalp 3 night a week.)

Maya's fall schedule is nearly solidified, and although she's as busy as ever, the spacing of her appointments seems much better this year---I'm excited to have better chunks of free time!  At first glance, though, she's certainly a busy girl:

That's it for now----I just pulled 2 loaves of apple bread out of the oven, and they're calling my name :)

Why can't we just pick some apples like normal people?

Seriously.  We are not fruit hoarders . . . how did we end up with this many apples?

I'm going to plead ignorance.  I had no idea how many apples would fit into a bag.  Plus, last year we went to a different orchard---where you paid for a (much smaller) bag, and then got to fill it.  This place (Bishop's Orchards, which was great) weighed the bags, but we still overfilled them.  This is slightly over 2 bags of apples.  Very poor planning.   I'm hoping that applesauce freezes well, because Maya likes it.  Any other apple ideas?  Feel free to add them as a comment!

Anyway, we met my mom, sister, brother-in-law, nephew & niece at the orchard and had such a fun day!  Here are a few pictures:

                                          Emmie: Maya, I will set you free.

                                         Maya: You know how to work the straps?  I've been trying to figure it out
                                                    for months!

Cousin love (and tickles)

Complete pictures from the day are up on the blog's Facebook page (where photo memory is unlimited!).  Remember, you don't need to be a Facebook user to see our fanpage, it's public---just click on the picture at the top of this page, or google " 'Uncommon Sense Blog' Facebook".

Sudden Progress!

Right before we left my sister's house, Maya did 2 amazing things!  First, she signed "milk"---she's never done it before, and it's always amazing to see her sign something new.  I've been signing milk daily for months and months, and never even seen any indication that she cares when I sign it---then suddenly, boom!  She does it!

Annnddddd, then we decided to hand her her bottle (she gets one before naptime and one at bedtime) in the car to see if she could try to drink it on her own---and she did!  She needed a little help as the milk level dropped (we may need to switch back to smaller bottles that would be easier to tilt up), but she was able to hold her own bottle in the car.  I was a little bit giddy :)

Very slow progress:

On the opposite end of the progress spectrum, physical therapy type progress is slow going.  The great news is that Maya stands a lot more---she pulls up quickly and cruises well.  You guys get to see a lot of pictures where she looks like a stable, standing rockstar.  Like this:

However, in reality, she often looks like this:

(I like to think of this move as the "teapot" from the line "tip me over and pour me out" in the teapot song)

That's Miss Maya mid-fall, while cousin Collin thinks "What happened?  You were just standing so normally!".  She stands (and moves) with her knees locked---so the smallest wobble can send her tumbling.  She also tends to fall over when she gets excited (which is pretty darn cute, actually).  She'll be sitting on the floor and I'll say "Do you want to watch Signing Times?"---and she'll get all excited, start to laugh and wave her arms around, and topple right over :)     We're working on it. 

New pics from today up on the Facebook page---check them out!

Back here the cleaning continures---tomorrow we're heading to CT for apple picking :)