tag:blogger.com,1999:blog-4675590510792979183.post897495427160602579..comments2024-03-28T04:11:32.480-04:00Comments on Uncommon Sense: They Said She Wasn't Ready (four times)Danahttp://www.blogger.com/profile/11193445038085911249noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-4675590510792979183.post-84809769764848731942023-12-02T04:08:21.898-05:002023-12-02T04:08:21.898-05:00Thank you for sharing your blog post about New Yor...Thank you for sharing your blog post about New York's divorce laws. It's admirable how well you were able to organize and clearly convey the legal facts. You've clearly done a lot of study to give readers factual information.<br /><a href="https://srislaw.com/estatutos-de-divorcio-de-nueva-york/" rel="nofollow">Estatutos de Divorcio de Nueva York</a><br />sopfiaahttps://www.blogger.com/profile/04343124330519619863noreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-65095255452522898002014-08-08T05:29:16.631-04:002014-08-08T05:29:16.631-04:00Hi anonymous---
My gut says that you start now, s...Hi anonymous---<br /><br />My gut says that you start now, simply because the only way to learn that a device can be a voice is to be immersed in the modeling of it. It's very similar to the way that we speak to babies for an entire year before expecting them to say their first words back, or model sign language for many months before hoping to sign a returned sign approximation.<br /><br />That being said, CVI is a bit outside of my range of expertise, but I know that it presents some challenges when selecting AAC. If you want to come to the SFY users group and ask the families/therapists there about AAC selection with CVI they might have some insight. I would also check local therapeutic hospitals/CP organizations to see what sort of AT/AAC resources they might have to get you started with AAC.<br /><br />Users group link: https://www.facebook.com/groups/273873326092019/Danahttps://www.blogger.com/profile/11193445038085911249noreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-34076164919857679542014-08-06T12:14:44.010-04:002014-08-06T12:14:44.010-04:00I really love your posts and they have been a usef...I really love your posts and they have been a useful guide. I'm ready for the day people tell me my child is not ready for an AAC device. However, I'm stuck wondering how you know when your child IS ready. I have a 15 month old with mod-sev cerebral palsy. She does not reach, play with things, vocalize, roll, consistently respond to sound, has cortical visual impairment, etc etc. What should I look for to know when I should start having her play with an AAC device? Would really appreciate some insight on this, and I recognize my daughter may never reach that point but still, I want to know we did all we could. Thanks!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-81851617810261171082014-07-27T11:27:01.065-04:002014-07-27T11:27:01.065-04:00so amazing! maya is so lucky to have you as her m...so amazing! maya is so lucky to have you as her mama! Avery could likely be doing so much more with her Accent 1200....can I rent you? :)Ericahttps://www.blogger.com/profile/17851509745425295624noreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-69350661990370396472014-07-25T22:16:48.303-04:002014-07-25T22:16:48.303-04:00She is brilliant!!! I don't know you or her, ...She is brilliant!!! I don't know you or her, and have no connection to your family....but I found myself beaming with pride as I watched the video! This is so great, and YES...I hope the skeptics are going to have their socks blown off. I hope that many many more children get to access this type of tool! My daughter had and still has many doubters....she is proving them all wrong! Keep up the hard work, and enjoy every minute of your super stars progress!!!!<br />-ShannonUnknownhttps://www.blogger.com/profile/05282881522279029431noreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-75164885146057686332014-07-25T10:55:13.056-04:002014-07-25T10:55:13.056-04:00We were told the same thing about our daughter who...We were told the same thing about our daughter who had a massive stroke at age 22. They wanted to graduate her from a velcro word board to a small 6 button device for essentials like bathroom needs and i want to go to bed.I insisted we try others. They would not approve an IPAD so we ended up with a Cadillac dynavox. Tech that programmed it only worked with small very mentally disabled children. Hard drive died after only 8 weeks. We bought an Ipad and Proloque 2 go and she took off. Put her on facebook so she could see what her friends were up to and the swiping only got better. We put on lots of p reprogrammed phrases appropriate for a young adult. She is re learning how to type. Slow process with the opposite hand. I always go with let's try it...you just never know till you do.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-55179231066505686132014-07-25T10:10:30.119-04:002014-07-25T10:10:30.119-04:00People have rights. The right to effective communi...People have rights. The right to effective communication is one of them.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-74627352516967335732014-07-25T07:50:51.508-04:002014-07-25T07:50:51.508-04:00What's frightening about this us anyone who ac...What's frightening about this us anyone who actually bothered to watch your videos would not have been surprised at all by Maya's abilities to use a sophisticated AAC device by this age nor her ability to read. Her love of letters, her grasp of letter sounds, her phenomenal visual memory,her almost desperate desire to communicate not to mention her quick processing of directions and all spoken language ( she clearly understood and was able to respond immediately to what was being said) have been obvious in the videos you made over the years from those first letter cards where she recognized letters you had no idea she knew, to the letter wall and picture card book where she was able to keep track of where things were ( where the animal page in the book was for example) and find them with almost shocking speed. Shame on anyone evaluating your girl for not educating themselves with the best evidence of Maya's abilitiesAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-9655353610031748782014-07-24T21:34:10.656-04:002014-07-24T21:34:10.656-04:00YEp, same here: No one told us! Even though in ear...YEp, same here: No one told us! Even though in early intervention time and time again they would say how can we help you? and I would say just let me know about all available services, therapies, ideas, strategies etc. When I figured out it existed they all pretended not to hear, not to know or just found a way to let it pass. When i formally requested it in writing: "no on is assigned to that." So I am persuing it on my own and we will see. Thank you so much for all you do and I know have SFY and I am slowly getting the hang of it.<br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-31177628668886028672014-07-24T21:29:16.361-04:002014-07-24T21:29:16.361-04:00Dana, I love this SO.MUCH! Your story, Maya's,...Dana, I love this SO.MUCH! Your story, Maya's, could easily be ours. My son is ten and a half and we didn't get started on the road to AAC until he was the age Maya is now. Why? For the very first reason you mentioned-- NO ONE TOLD US ABOUT IT.<br /><br />It infuriates me that so many professionals still believe there is a hierarchy of AAC learning which our children must master in some order before they are allowed to progress to another option.Anonymousnoreply@blogger.com