tag:blogger.com,1999:blog-4675590510792979183.post4017785277773877532..comments2024-03-28T04:11:32.480-04:00Comments on Uncommon Sense: Pull up a chair . . .Danahttp://www.blogger.com/profile/11193445038085911249noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-4675590510792979183.post-74003737331679990402011-12-05T23:29:13.765-05:002011-12-05T23:29:13.765-05:00I know that I don't know you, but I am proud o...I know that I don't know you, but I am proud of you for standing up for your daughter. Britney may be teh expert on this device, but you are the expert of Maya. ANd because of that you have to fight for what you know is right for her. I hope everythign goes smoothly during the trial period and Maya pick it up quick. Good LuckKatiehttps://www.blogger.com/profile/01263934845155733032noreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-67219994609043148492011-12-05T14:50:56.709-05:002011-12-05T14:50:56.709-05:00I am so glad you shared this the way you did. We a...I am so glad you shared this the way you did. We are not yet to the IEP meeting stage, and I am a bit terrified fo the prospect. Reading this stuff helps me mentally prepare in some way for when we do. You and Maya are so fantastically lucky to have one another, amd I'm lucky to be able to learn from your experiences. I bet Maya will rock your socks off with the new device :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-73321435289182858472011-12-04T18:11:36.820-05:002011-12-04T18:11:36.820-05:00Powerfully written. I was in the room with all of...Powerfully written. I was in the room with all of you and observing all of it. Maya is a wonderfully typical 3 year old in so many ways.<br /><br />You can see the gleam in her eye in the videos. Thank you for sharing her with all of us.Lucie Knighthttps://www.blogger.com/profile/05889319222021083291noreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-83472303009078532482011-12-04T14:59:51.087-05:002011-12-04T14:59:51.087-05:00You should be proud of yourself! You are an aweso...You should be proud of yourself! You are an awesome advocate. Those meetings are horrible. It's obviously an issue of cost, rather than Maya's ability to use the equipment. I'm glad her teacher stood up for her. <br /><br />It is a shame that everything has to be a battle and it is not fair. Keep up the good work.Rosemarynoreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-75890666970443281982011-12-04T00:50:13.442-05:002011-12-04T00:50:13.442-05:00I had silent tears for you Dana! It is the most di...I had silent tears for you Dana! It is the most difficult thing to keep your cool, (so that you don't look like the spazzy mom) and advocate for your tiny person. <br /><br />One of my fav quotes: To be treated fair, doesn't always mean to be treated equal. <br /><br />I don't think alot of <br />"professionals" understand that. They only see a snippet of our special people while we see it all. Great Job!! and YAY for the Dynavox.Jon and Alysonhttps://www.blogger.com/profile/13746031578475385373noreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-52655157353016604962011-12-03T23:06:41.750-05:002011-12-03T23:06:41.750-05:00I'm so glad Maya is able to have a trial with ...I'm so glad Maya is able to have a trial with the higher-tech device. You're such a good mom and advocate for your little girl!GPhttps://www.blogger.com/profile/01120890283968477272noreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-31828668808997125982011-12-03T22:28:25.772-05:002011-12-03T22:28:25.772-05:00I would hope that at a minimum anyone evaluating M...I would hope that at a minimum anyone evaluating Maya would take the time to look at a few of your videos. And if they had they would KNOW that Maya is capable of categorizing. I mean watch her flip through the work book remembering more or less (as well as anyone of any age would) what she was looking for (animals) and what page it was on and then where it went back. <br /><br />I am going to say again that I think the fact that only a small percentage of the population who needs a communications device has the kind of high cognitive ability combined with super strong (almost desperate) communiative intent and concentration (for a three year old) that Maya does is going to be an issue. The "experts' just aren't used to dealing with this level of intelligence and are apt to think it's just a parent's wishful thinking. But really watch Maya on those videos and you see, no it's not just about a mom thinking her kid is functioning at this level, she actually is.Anniehttps://www.blogger.com/profile/16831580101168618303noreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-2100112076683470462011-12-03T19:58:41.288-05:002011-12-03T19:58:41.288-05:00I think people who evaluate 3-year-olds should cur...I think people who evaluate 3-year-olds should currently be spending a lot of time with 3-year-olds. Those of us who spend time with 3-year-olds know they are not canines, trained to obey commands; the 3-year-old is a clever, stubborn, complicated, amazing, twinkly human being. Also, I don't think 3-year-olds should be evaluated in an office setting, ever!SerenityByJanhttps://www.blogger.com/profile/10587558741726172519noreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-79030107743510320192011-12-03T19:50:33.450-05:002011-12-03T19:50:33.450-05:00Just sending you strength....I feel your frustrati...Just sending you strength....I feel your frustration.....and know that all of the fighting and difficult times will be worth it. take care.Cheryl (in Buffalo)noreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-5759359246785190622011-12-03T18:39:03.430-05:002011-12-03T18:39:03.430-05:00As I am earning my PhD in psychology , your post m...As I am earning my PhD in psychology , your post made me realize that so many academics and practitioners have the mistaken conclusion that the love, hope and emotion parents have for their children in someway is a substitute for intellect , observation and general common sense. Why don't they stop and think that love and intellect form a wonderful nurturing combination for parenting a special needs child? It appears that Brittney is really underestimating you more than she is underestimating Maya.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-70420374638121376392011-12-03T16:15:38.297-05:002011-12-03T16:15:38.297-05:00This is all so new to me! My son is 55 years old a...This is all so new to me! My son is 55 years old and when he was 3 we had no idea where we could get help. The speech therapist we hired on our own said he didn't have the inner language to talk; we knew better.<br /><br />The Director of Special Ed said he couldn't go to school until he was 8 years old. I taught kindergarten and took him with me.<br /><br />I don't understand why professionals can't realize that parents know their children better than anyone else. And I thought that battle was over.<br /><br />Keep fighting!Jane Schulzhttps://www.blogger.com/profile/12469491915306525613noreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-9185843231522591432011-12-03T16:14:41.900-05:002011-12-03T16:14:41.900-05:00I can feel your frustration through your words, an...I can feel your frustration through your words, and your anxiety & your relief. <br />I can't imagine how hard it must be for you, I got angry at the dr's office this morning for refusing to see Peyton for a UTI, that I knew she had, and almost burst into tears.<br />The other kids had a cold! Urgent care won't cath a pediatric patient, I know I've called them all, before. <br />It really sucks to have to advocate for things like this, because you KNOW what your child needs, and it's such an emotional toll to get someone else to see what you see everyday.<br />Hugs, it's all over, for now, and just relax and see if this really is a good fit for her right now.<br />You are a great mom!Just the Tiphttps://www.blogger.com/profile/07207455676987959105noreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-85192218854833484952011-12-03T15:54:05.187-05:002011-12-03T15:54:05.187-05:00Please take more videos of Maya and show them to B...Please take more videos of Maya and show them to Britney at your next meeting. <br /><br />Also, remind Britney that what she is seeing that day is a "snapshot" of Maya. Taken that day, with a stranger in an atypical environment.<br />She knows this (I hope) but sometimes we all need reminded.<br /> <br /><br />I am an preschool SLP with experience with AAC. I wouldn't hesitate to jump to something dynamic like the Dynavox after seeing those videos you take of Maya.Chicory Bluehttps://www.blogger.com/profile/01411168515570431153noreply@blogger.com