tag:blogger.com,1999:blog-4675590510792979183.post3120880951089446472..comments2024-03-28T04:11:32.480-04:00Comments on Uncommon Sense: The week that nightmares are made ofDanahttp://www.blogger.com/profile/11193445038085911249noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-4675590510792979183.post-35220501525528389362011-11-30T12:25:18.629-05:002011-11-30T12:25:18.629-05:00Hi. I hope my comments are't out of place here...Hi. I hope my comments are't out of place here. I have a daughter who had expressive language delays but never dealt with what you are. However, I love your blog and wanted to make a few comments based on my very limited experience. <br /><br />First, from watching your videos it seems abundently clear that you have a daughter whose cognitive abiltiies are very high. Very vey high. I understand she may not be hearing you perfetly and that just makes her ability to process what you are asking her and respond so rapidly all the more stunning. Her visual memory is almost shockingly high for any little kid. Not only her use of the word book shows this but that video where you had the letters taped to the wall and she knew as soon as you asked her for the letter approximately where it was in the alphabet and which side and part of th wall it would be on. My experience is that the therapists and the ones making decision deal with few kids with this high a level of cognition (she's sight reading at 3?!! and then can baby-sign within a millisecond the word you wrote...amazing. So you have your work cut out for you because you have to help the "experts" understand just how special your daughter's needs are. All moms think that their kid is a genius, but you might be right (she's clearly very very bright) and those experts need to understand that.<br /><br />I hope this doesn't come off as obnoxious, but I am blown away by your daughter's skills and hope you get the help you need for her. She has amazing potential.Anniehttps://www.blogger.com/profile/16831580101168618303noreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-38660977619564932562011-11-29T12:24:14.378-05:002011-11-29T12:24:14.378-05:00Our daughter has RETT and we're recently going...Our daughter has RETT and we're recently going through some of the same battles. We've had the diagnosis just over 6 months and it came with relief but also a total loss of hope initially. Just wanted to share on ACC devices. We ALMOST purchased the Maestro but didn't b/c we opted to go with an eye gaze device. Ellie uses her hands but we were blown away with the ability she has using her eyes! We're buying the PRC EchoPoint2 with eye gaze. Maybe worth a trial!? Ellie can use her hands but her eyes are so much more accurate. It's about the same size as the maestro. Our blog is www.rettmomma@blogspot.com if you want more info. ~AngieAnonymousnoreply@blogger.com