tag:blogger.com,1999:blog-4675590510792979183.post2492051677406013967..comments2024-03-28T04:11:32.480-04:00Comments on Uncommon Sense: Undiagnosed Children's Day is tomorrow!Danahttp://www.blogger.com/profile/11193445038085911249noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-4675590510792979183.post-90823032563502908942013-04-13T12:45:54.398-04:002013-04-13T12:45:54.398-04:00Wonderful post! I am Addison & Audrina's m...Wonderful post! I am Addison & Audrina's mom over at http://answersforaddison.blogspot.com<br /><br />Love this - you said everything I wanted to say. Adam & Kimberlyhttps://www.blogger.com/profile/15113598549993028374noreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-3618983882540179072012-04-19T01:20:28.342-04:002012-04-19T01:20:28.342-04:00I'm sorry that I missed this day. It is a fabu...I'm sorry that I missed this day. It is a fabulous idea. I will be on it last year!the mommy psychologisthttp://www.themommypsychologist.comnoreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-36626135509813269842012-04-18T07:44:30.295-04:002012-04-18T07:44:30.295-04:00Hi Dana,
I have just discovered your blog and am r...Hi Dana,<br />I have just discovered your blog and am really enjoying it! Thank you!!! I have a little girl very similar to Maya and I am currently in the process of trying to convince my husband we should get a therapy dog buddy for her, so it's lovely to read about Parker and Maya together. I missed reading about Undiagnosed Children's Day too but will look forward to wearing blue here in Australia next year. <br /><br />Also, they're not Communication apps. but my little one is enjoying 'Sound Shaker' and 'Wood Puzzle'. Easy to use and clear sounds and graphics.<br /><br />MelissaMelissanoreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-6569742163482467372012-04-16T16:20:28.599-04:002012-04-16T16:20:28.599-04:00Yep it puzzles people. They wonder how can she not...Yep it puzzles people. They wonder how can she not<br />Have a dx. My short answer is doctors nor science are God and only He knows at this point!Lady Estherhttps://www.blogger.com/profile/07055253194845947389noreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-60896929195026621962012-04-16T13:22:31.318-04:002012-04-16T13:22:31.318-04:00Sadly saw this post 3 days too late but will put i...Sadly saw this post 3 days too late but will put in the diary for next year to share with all the SWAN UK members!Laurenhttps://www.blogger.com/profile/14472992534297044385noreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-4928969003566887162012-04-13T16:42:51.871-04:002012-04-13T16:42:51.871-04:00I sent a link to your post today to a friend with ...I sent a link to your post today to a friend with a daughter who is undiagnosed. Thank you for sharing! Helpful to have support.Emmett's Fighthttps://www.blogger.com/profile/08242572336190123738noreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-13646883552416503542012-04-13T11:00:38.529-04:002012-04-13T11:00:38.529-04:00Hi!thanks for your lovely post. I'm anonymous...Hi!thanks for your lovely post. I'm anonymous comment (Zach's mom. Just didn't want to be anonymous, I'm having some operator problems to add my profile to the comments. This is my blog that's still a work in progress: <br />http://charm11.blogspot.com/<br />Wearing blue today!Clara Harmonsonhttps://www.blogger.com/profile/02729432397360297440noreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-63039364964049149452012-04-13T10:55:42.779-04:002012-04-13T10:55:42.779-04:00This comment has been removed by the author.Clara Harmonsonhttps://www.blogger.com/profile/02729432397360297440noreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-42830672585139102452012-04-13T10:07:29.347-04:002012-04-13T10:07:29.347-04:00Hi Dana,
Just shared your post on my Facebook wall...Hi Dana,<br />Just shared your post on my Facebook wall. Your post says it all! Thank you!Beatenoreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-76524721920892500712012-04-13T00:56:55.903-04:002012-04-13T00:56:55.903-04:00My angel Zach died undiagnosed 3/13/12. From an un...My angel Zach died undiagnosed 3/13/12. From an undiagnosed genetic syndrome, still waiting to see if he got qualified for Medicaid since he was medically fragile, and was told from many non profits "call us back when you get a diagnosis". I also got the "science has to catch up with your son" speech, and well at this point we feel that having answers is important to set up a purpose for treatment, to get help, to find a group for children with syndrome Abcd or Xyz, to at least have something to tell people when they want to know about your kid, etc. Now I wear black & white only because I'm grieving, but I will definitely wear blue tomorrow!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-41611803432919961062012-04-13T00:02:15.388-04:002012-04-13T00:02:15.388-04:00Your amazing and I love your writing! You say what...Your amazing and I love your writing! You say what we all are feeling.Katiehttps://www.blogger.com/profile/16622617645970592019noreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-58407265201887622102012-04-12T22:28:16.456-04:002012-04-12T22:28:16.456-04:00Thanks for sharing! I had no idea such a day exis...Thanks for sharing! I had no idea such a day exists. I'm happy to share and spread the word. Here's a link to my blog write-up: http://metamorphosistohealth.blogspot.com/2012/04/undiagnosed-childrens-day-is-tomorrow.htmlAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4675590510792979183.post-29078308574153499102012-04-12T21:08:16.164-04:002012-04-12T21:08:16.164-04:00Hi Dana,
Another great post and I will wear blue f...Hi Dana,<br />Another great post and I will wear blue for all our SWAN kiddos. Thanks for helping bring awareness to our situation. I agree wholeheartedly that while having a "name" doesn't make it easier it certainly can make a difference in a lot of situations. Love your blog!!<br />ColetteColettehttp://www.coletteorfeo.comnoreply@blogger.com